Disability History and Studies

The first book to cover the entirety of disability history, from pre-1492 to the present Disability is not only the story of someone we love or the story of whom we may become; rather it is undoubtedly the story of our nation. Covering the entirety of US history from pre-1492 to the present, A Disability History of the United States is the first book to place the experiences of disabled people at the center of the American narrative. In many ways, it's a familiar telling. In other ways, it is a radical repositioning of US history. By doing so, the book casts new light on familiar stories, such as slavery and immigration, while breaking ground about the ties between nativism and oralism in the late nineteenth century and the role of ableism in the development of democracy. A Disability History of the United States pulls from primary-source documents and social histories to retell US history through the eyes, words, and impressions of the people who lived it. As historian and disability scholar Nielsen argues, to understand disability history isn't to narrowly focus on a series of individual triumphs but rather to examine mass movements and pivotal daily events through the lens of varied experiences. Throughout the book, Nielsen deftly illustrates how concepts of disability have deeply shaped the American experience-from deciding who was allowed to immigrate to establishing labor laws and justifying slavery and gender discrimination. Included are absorbing-at times horrific-narratives of blinded slaves being thrown overboard and women being involuntarily sterilized, as well as triumphant accounts of disabled miners organizing strikes and disability rights activists picketing Washington. Engrossing and profound, A Disability History of the United States fundamentally reinterprets how we view our nation's past- from a stifling master narrative to a shared history that encompasses us all. About the Series Beacon Press's ReVisioning History series consists of accessibly written books by notable scholars that reconstruct and reinterpret US history from diverse perspectives.

"Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again."-Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent-but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people,just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson's account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond- this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

Disability Incarcerated gathers thirteen contributions from an impressive array of fields. Taken together, these essays assert that a complex understanding of disability is crucial to an understanding of incarceration, and that we must expand what has come to be called 'incarceration.' The chapters in this book examine a host of sites, such as prisons, institutions for people with developmental disabilities, psychiatric hospitals, treatment centers, special education, detention centers, and group homes; explore why various sites should be understood as incarceration; and discuss the causes and effects of these sites historically and currently. This volume includes a preface by Professor Angela Y. Davis and an afterword by Professor Robert McRuer.

The remarkable story of Sins Invalid, a performance project that centres queer disability justice. In recent years, disability activism has come into its own as a vital and necessary means to acknowledge the power and resilience of the disabled community, and to call out ableist culture wherever it appears. Crip Kinship explores the art activism of Sins Invalid, a San Francisco Bay Area-based performance project, and its radical imaginings of what disabled, queer, trans, and gender-nonconforming bodyminds of colour can do: how they can rewrite oppression, and how they can gift us with transformational lessons for our collective survival. Grounded in the disability justice framework, Crip Kinship investigates the revolutionary survival teachings that disabled, queer of colour community offers to all our bodyminds. From their focus on crip beauty and sexuality to manifesting digital kinship networks and crip-centric liberated zones, Sins Invalid empowers and moves us toward generating our collective liberation from our bodyminds outward. Includes a foreword by Patty Berne, co-founder, and executive and artistic director of Sins Invalid.

A Publishers Weekly Best Book of the Year for Nonfiction "...an essential and engaging look at recent disability history."-- Buzzfeed One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism--from the streets of Brooklyn and San Francisco to inside the halls of Washington--Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy's struggle for equality began early in life. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people. As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

This is the best nonfiction book I ever read Ever wondered: where do people have sex when occupying a federal building? how the disability rights movement got saved by the Black Panther Party? what is important to queer disabled people? Fading Scars answers these questions and many more. Women's March "Must Read Book" Discover hundreds of insider stories about disabled parenting, sports, culture, racism, creating civil rights for disabled Americans, and much more. These essays explore the intersections of disability with sex, gender, race, and class through stories of struggle and triumph. A story about alliances and friendships and care and love. It tells us that we are all part of a history in the making and in the past. It is disability history, an American story, a world story, and our story. - Karen Nakamura, professor, University of California Berkeley She takes us on a wild ride through women's movements, creating disability rights, pride and resilience. Her compelling stories are infused with humor and wisdom that challenges your assumptions and opens your heart. Lambda Literary LBGT Nonfiction Finalist Fading Scars: My Queer Disability, History 2nd edition is Corbett Joan OToole's deeply personal account of making history in the disability rights movement of the 20th century in Berkeley, California. Her unique perspective as a white disabled lesbian allows us to peek at the complexity of how change happens. Read all about the historic 1977 sit-in in San Francisco, California fight for the first national disability law, Section 504. Fading Scars gives us a rare ring-side seat to how the 504 Sit-in. Reading OToole's account you learn: Why the FBI couldn't shut down the occupation How the Deaf people provided communication when the phones were turned off The best place for sex was the elevator alcove Follow Corbett as she leads 50 disabled women to the United Nations Fourth International Conference on Women and co-organized the Disabled Women's Symposium which brought together over 200 disabled women from around the world. Follow Corbett's journey as a disabled parent who adopted a child with a disability. Revel in the joy she found co-organizing the first International Queer Disability Conference. The Women's March published a list of 5 MUST READ books to encourage people to Resist and Reflect. Fading Scars was selected to share a place with these powerful books that influence our thinking about women, communities, challenges and resiliency. Fading Scars is one of the five.

Nothing about us without us has been a core principle of American disability rights activists for more than half a century. It represents a response by people with disabilities to being treated with scorn and abuse or as objects of pity, and to having the most fundamental decisions relating to their lives?where they would live; if and how they would be educated; if they would be allowed to marry or have families; indeed, if they would be permitted to live at all?made by those who were, in the parlance of the movement, "temporarily able-bodied." In What We Have Done: An Oral History of the Disability Rights Movement, Fred Pelka takes that slogan at face value. He presents the voices of disability rights activists who, in the period from 1950 to 1990, transformed how society views people with disabilities, and recounts how the various streams of the movement came together to push through the Americans with Disabilities Act of 1990, the most sweeping civil rights legislation since passage of the Civil Rights Act of 1964. Beginning with the stories of those who grew up with disabilities in the 1940s and '50s, the book traces how disability came to be seen as a political issue, and how people with disabilities?often isolated, institutionalized, and marginalized?forged a movement analogous to the civil rights, women's rights, and gay rights movements, and fought for full and equal participation in American society.

Finalist, Judy Grahn Award for Lesbian Nonfiction In their new, long-awaited collection of essays, Lambda Literary Award-winning writer and longtime disability justice activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centres the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Leah writes passionately and personally about creating spaces by and for sick and disabled queer people of colour, and creative "collective access" -- access not as a chore but as a collective responsibility and pleasure -- in our communities and political movements. Bringing their survival skills and knowledge from years of cultural and activist work, Piepzna-Samarasinha explores everything from the economics of queer femme emotional labour, to suicide in queer and trans communities, to the nitty-gritty of touring as a sick and disabled queer artist of colour. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of colour are doing to find each other and to build power and community, and a toolkit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Powerful and passionate, Care Work is a crucial and necessary call to arms.

During the late nineteenth and early twentieth centuries, Americans with all sorts of disabilities came to be labeled as "unproductive citizens." Before that, disabled people had contributed as they were able in homes, on farms, and in the wage labor market, reflecting the fact that Americans had long viewed productivity as a spectrum that varied by age, gender, and ability. But as Sarah F. Rose explains in No Right to Be Idle, a perfect storm of public policies, shifting family structures, and economic changes effectively barred workers with disabilities from mainstream workplaces and simultaneously cast disabled people as morally questionable dependents in need of permanent rehabilitation to achieve "self-care" and "self-support." By tracing the experiences of policymakers, employers, reformers, and disabled people caught up in this epochal transition, Rose masterfully integrates disability history and labor history. She shows how people with disabilities lost access to paid work and the status of "worker--a shift that relegated them and their families to poverty and second-class economic and social citizenship. This has vast consequences for debates about disability, work, poverty, and welfare in the century to come.

A memoir-in-essays from disability advocate and creator of the Instagram account @sitting_pretty Rebekah Taussig, processing a lifetime of memories to paint a beautiful, nuanced portrait of a body that looks and moves differently than most. Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling. Writing about the rhythms and textures of what it means to live in a body that doesn't fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and whatnotto do) andhow you can help make the world a more inclusive place ONE OF THE BEST BOOKS OF THE YEAR NPR, Booklist . "A candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation . . . Emily makes the intimidating approachable and the complicated clear."-Rebekah Taussig, author of Sitting Pretty The View from My Ordinary, Resilient, Disabled Body People with disabilities are the world's largest minority, an estimated 15 percent of the global population. But many of us-disabled and nondisabled alike-don't know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on the important disability issues you need to know about, including . How to appropriately think, talk, and ask about disability . Recognizing and avoiding ableism (discrimination toward disabled people) . Practicing good disability etiquette . Ensuring accessibility becomes your standard practice, from everyday communication to planning special events . Appreciating disability history and identity . Identifying and speaking up about disability stereotypes inmedia Authored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience. Praise for Demystifying Disability "Whether you have a disability, or you are non-disabled, Demystifying Disability is a MUST READ. Emily Ladau is a wise spirit who thinks deeply and writes exquisitely."-Judy Heumann, international disability rights advocate and author of Being Heumann "Emily Ladau has done her homework, and Demystifying Disability is hercandid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation. A teacher who makes you forget you're learning, Emily makes the intimidating approachable and the complicated clear. This book is a generous and needed gift."-Rebekah Taussig, author of Sitting Pretty The View from My Ordinary Resilient Disabled Body

Named a Best Book of the Year by NPR and LitHub A fascinating and provocative new way of looking at the things we use and the spaces we inhabit, and a call to imagine a better-designed world for us all. Furniture and tools, kitchens and campuses and city streets-nearly everything human beings make and use is assistive technology, meant to bridge the gap between body and world. Yet unless, or until, a misfit between our own body and the world is acute enough to be understood as disability, we may never stop to consider-or reconsider-the hidden assumptions on which our everyday environment is built. In a series of vivid stories drawn from the lived experience of disability and the ideas and innovations that have emerged from it-from cyborg arms to customizable cardboard chairs to deaf architecture-Sara Hendren invites us to rethink the things and settings we live with. What might assistance based on the body's stunning capacity for adaptation-rather than a rigid insistence on "normalcy"-look like? Can we foster interdependent, not just independent, living? How do we creativelyengineer public spaces that allow us all to navigate our common terrain? By rendering familiar objects and environments newly strange and wondrous,What Can a Body Do?helps us imagine a future that will better meet the extraordinary range of our collective needs and desires.

How inclusive methods can build elegant design solutions that work for all.Sometimes designed objects reject their users- a computer mouse that doesn't work for left-handed people, for example, or a touchscreen payment system that only works for people who read English phrases, have 20/20 vision, and use a credit card. Something as simple as color choices can render a product unusable for millions. These mismatches are the building blocks of exclusion. In Mismatch, Kat Holmes describes how design can lead to exclusion, and how design can also remedy exclusion. Inclusive design methods-designing objects with rather than for excluded users-can create elegant solutions that work well and benefit all. Holmes tells stories of pioneers of inclusive design, many of whom were drawn to work on inclusion because of their own experiences of exclusion. A gamer and designer who depends on voice recognition shows Holmes his "Wall of Exclusion," which displays dozens of game controllers that require two hands to operate; an architect shares her firsthand knowledge of how design can fail communities, gleaned from growing up in Detroit's housing projects; an astronomer who began to lose her eyesight adapts a technique called "sonification" so she can "listen" to the stars. Designing for inclusion is not a feel-good sideline. Holmes shows how inclusion can be a source of innovation and growth, especially for digital technologies. It can be a catalyst for creativity and a boost for the bottom line as a customer base expands. And each time we remedy a mismatched interaction, we create an opportunity for more people to contribute to society in meaningful ways.

A history of design that is often overlooked--until we need it Have you ever hit the big blue button to activate automatic doors? Have you ever used an ergonomic kitchen tool? Have you ever used curb cuts to roll a stroller across an intersection? If you have, then you've benefited from accessible design--design for people with physical, sensory, and cognitive disabilities. These ubiquitous touchstones of modern life were once anything but. Disability advocates fought tirelessly to ensure that the needs of people with disabilities became a standard part of public design thinking. That fight took many forms worldwide, but in the United States it became a civil rights issue; activists used design to make an argument about the place of people with disabilities in public life. In the aftermath of World War II, with injured veterans returning home and the polio epidemic reaching the Oval Office, the needs of people with disabilities came forcibly into the public eye as they never had before. The US became the first country to enact federal accessibility laws, beginning with the Architectural Barriers Act in 1968 and continuing through the landmark Americans with Disabilities Act in 1990, bringing about a wholesale rethinking of our built environment. This progression wasn't straightforward or easy. Early legislation and design efforts were often haphazard or poorly implemented, with decidedly mixed results. Political resistance to accommodating the needs of people with disabilities was strong; so, too, was resistance among architectural and industrial designers, for whom accessible design wasn't "real" design. Bess Williamson provides an extraordinary look at everyday design, marrying accessibility with aesthetic, to provide an insight into a world in which we are all active participants, but often passive onlookers. Richly detailed, with stories of politics and innovation, Williamson's Accessible America takes us through this important history, showing how American ideas of individualism and rights came to shape the material world, often with unexpected consequences.